International Summits on Intellectual Disability and Dementia
2016 and 2023​

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Summit I - Glasgow 2016

​In October 2016, the inaugural International Summit on Intellectual Disability and Dementia was held in Glasgow, Scotland with 32 representatives from twelve countries in attendance, and the pre-recorded experiences of people with intellectual disabilities shared at the event. The International Summit was planned, developed and facilitated by Professor Karen Watchman, University of Stirling, Scotland and Professor Matthew Janicki, University of Illinois at Chicago. Topic reports are shown below with a full list of all academic publications here 

Summit I 2016 policy and practice bulletins

• Report of first summit on intellectual disability and dementia  report_of_first_intellectual_disabitly_and_dementia_summit.pdf
• Policy & Practice Bulletin 1: Nomenclature 1_nomenclature.pdf
• ​Policy & Practice Bulletin 2: Perspectives of Persons with Intellectual Disability 2_perspectives_of_persons_with_intellectual_disability_and_dementia.pdf
• ​Policy & Practice Bulletin 3: Advanced Dementia 3_advanced_dementia.pdf
• ​Policy & Practice Bulletin 4: Human Rights and CRPD 4_human_rights.pdf
• Policy & Practice Bulletin 5: Inclusion in National Dementia Strategies 5_inclusion_in_national_dementia_plans___strategies.pdf​
• ​Policy & Practice Bulletin 6: Post-diagnostic support  6_post_diagnostic_support.pdf
• ​Policy & Practice Bulletin 7: Community Dementia Capable Practice 7_community_dementia_capable_supports.pdf
• ​Policy & Practice Bulletin 8: Family Carers  8_family_carers.pdf
• Policy & Practice Bulletin 9: End of Life Care 9_end_of_life_care.pdf​​

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Summit II - ​Toronto 2023

The second international summit on intellectual disability and dementia took place in Toronto, Canada in October 2023.The focus was on three topics:
1. Addressing human rights and equity concerns.
2. Establishing identifiable physical and social determinants of health affecting brain health and potentially minimising or increasing risk for dementia.
3. Understanding concurrent lifelong neurodiverse conditions and their additive features to raising risk for dementia.​

Summit II publications

• Autism, aging and dementia 

Further publications will be added in 2024/2025

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Summit I was sponsored by The RS MacDonald Charitable Trust, Alzheimer Scotland, University of the West of Scotland and The Scottish Government. Collaborating supporters included the National Task Group on Intellectual Disabilities and Dementia Practices (NTG), University of Stirling, Scotland and the University of Illinois at Chicago, USA.
Summit II was sponsored by Reena, Surrey Place, Azrieli Foundation, Temple University and the Butz Family Fund. Collaborating supporters included NTG USA, NTG Canada, IASSIDD, University of Stirling and the HealthMatters Program.