Learning disability and dementia home page

Welcome

Dementia matters to people with a learning (intellectual) disability and here you will find many examples of this in research and practice. This includes the opportunity to download Jenny's Diary in a range of formats and languages, and to read a series of reports from the 2016 International summit on learning disability and dementia.

This website contains links to resources, information about recent and current participatory research with associated open-access academic publications, and details of how to access my training on learning disability and dementia. The (orange) resource previously known as Supporting Derek featuring Peter and Derek, actors with a learning disability, is now available as part of a self-guided training pack, see Self Guided Study page for more details. I have uploaded a selection of recent presentations that I have delivered in person or online at the request of different organisations or at conferences, all are publicly available and may be shared.

I am currently leading a Dunhill Medical Trust funded project, Stand by Me, studying relationships between couples with a learning disability when one partner has dementia. We are in the final stage of this study, our first publications are available to download on the project page with more to follow. We are also busy with the advisory group planning dissemination activities to share findings in an accessible way.

Other recent work includes collaboration with Health Improvement Scotland, Alzheimer Scotland and the Care Inspectorate to develop guidance to support people with a learning disability and dementia before, during and after a move to a care home should this be appropriate, My New Home.

Karen
Professor of Ageing, Dementia and Frailty
University of Stirling

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