WelcomeDementia matters to people with a learning (intellectual) disability and here you will find many examples of this in research and practice. This includes the opportunity to download Jenny's Diary in a range of formats and languages, and to read a series of reports from the 2016 International summit on learning disability and dementia.
This website contains links to resources, information about recent and current participatory research with associated open-access academic publications, and details of how to access my training on learning disability and dementia. The (orange) resource previously known as Supporting Derek featuring Peter and Derek, actors with a learning disability, is now available as part of a self-guided training pack, see Self Guided Study page for more details. I am currently leading a Dunhill Medical Trust funded project, Stand by Me, studying relationships between couples with a learning disability when one partner has dementia. We have completed data collection and are currently planning how to share learning from the research, watch this space! Other recent work includes collaboration with Health Improvement Scotland and the Care Inspectorate to develop guidance to support people with a learning disability and dementia before, during and after a move to a care home should this be appropriate, My New Home. Karen Professor of Ageing, Dementia and Frailty University of Stirling |
6 points to consider...
Hard to reach or under-researched?
Elder magazine interview
Karen's University of Stirling staff page
Guide for families
Alzheimer's Society factsheet
Edited textbook
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