Our inclusive team of co-researchers at the University of Stirling, Scotland recognise that dementia matters to people with a learning (intellectual) disability. I have collaborated over many years with people who have a learning disability, family members and staff to develop a range of resources, training and accessible information based on my research. This website has been developed to share some of this learning and resources about how dementia may affect people with a learning disability.
By using the menu to the left (or menu option above left on a mobile device) you will see that some of the pages on this website tell the story of different areas of my work in practice and higher education over many years. This includes the chance to download Jenny's Diary in a range of formats and languages, and to read a series of reports from the 2016 international summit on learning disability and dementia. Other pages provide links to resources or projects around the world with the aim of sharing openly accessible information as widely as possible. My previous roles include Chief Executive of Down's Syndrome Scotland and Depute Director of the Alzheimer Scotland Centre for Policy and Practice, University of the West of Scotland. Both roles, and my current position, have a strong focus on public engagement, making complex information more accessible and disseminating research and learning through a range of channels.
There is not a consistent approach to post-diagnostic support for people with a learning disability. I am currently leading a team investigating non-drug supports with people who have a learning disability and dementia. My co-researchers with a learning disability have learnt to use photovoice methodology. This involves taking photographs as a way of sharing their knowledge by experience. Together, we are developing a digital story of the study to convey how much 'dementia matters' to the team, you can follow our progress here.
Please scroll down the page for examples of my recent blogs, interviews and publications.
University of Stirling
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