what is the research about?
This UK-wide research, named Stand by Me by the advisory team, aims to find out more about the experiences of couples with a learning disability when one partner has dementia. We have used 'focused conversations' to talk with people in, or previously in, a relationship. We have also interviewed health and social care professionals and family members who have supported one or both partners in a relationship affected by dementia. The research will end in 2023 and we have now collected all of the data. We would like to thank all participants and all organisations who have helped us so far by telling people about the study.
We will share updates below and a series of research blogs as the study progresses.
Click to read our blogs and listen to podcasts.
Meet the research team
Meet the advisory team
Andrew and Paula presented a poster at the 7th World Congress on adult capacity at Edinburgh International Conference Centre from 7th-9th June 2022. The poster will also be presented at Alzheimer Europe conference in October 2022.
Download a copy of the poster here
Learning Disability Awareness Week, Scotland
Andrew recorded this podcast to share his experience of being a co-researcher and adviser to two dementia research projects at the University of Stirling.
Click the arrow to start (photographs and audio).
Development of the information we are sharing about the research has been led by Michael McKernon, Andrew Doyle and Louise Boustead. Click the links below for examples of their work.
Sample information sheet
Sample consent form
A brief overview of who we would like to include in the research is shown below.
Participant briefing paper
Paula presented an overview of the study at a European conference (online). The presentation can be viewed here.