what is the research about?
This UK-wide research, named Stand by Me by the advisory team, aims to find out more about the experiences of couples with a learning disability when one partner has dementia. We will use 'focused conversations' to talk with people in, or previously in, a relationship. We are also interviewing health and social care professionals and family members who have supported one or both partners in a relationship affected by dementia. The study will run from 2021 - 2023 and we will continue to recruit participants until July 2022. We will share updates below and a series of research blogs as the study progresses.
Click to read our blogs and listen to podcasts.
PARTICIPANT recruitment information
Development of the information we are sharing about the research has been led by Michael McKernon, Andrew Doyle and Louise Boustead. Click the links below for examples of their work.
Sample information sheet
Sample consent form
A brief overview of who we would like to include in the research is shown below.
Participant briefing paper
Please contact Paula Jacobs if you have a learning disability and are (or have been) in a relationship where your partner had dementia. We would also like to hear from you if you are a professional or family member who has provided support. Interviews can be face to face or online.
Meet the research team
Meet the advisory team
Learning Disability Awareness Week, Scotland
Andrew released this recording to share his experience of being a co-researcher and adviser to two dementia research projects at the University of Stirling.
Paula presented an overview of the study at a European conference (online). The presentation can be viewed here.