what is the research about?
This research, named Stand by Me by the advisory team, aims to find out more about the experiences of couples with a learning disability when one partner has dementia. We will use 'focused conversations' to talk with people in a relationship and will also interview support staff and families. The study will run from 2021 - 2023 and we are now recruiting participants. We will share updates and a series of research blogs as the study progresses.
Click to read our blogs and listen to podcasts.
PARTICIPANT recruitment information
Development of the information we are sharing about the research has been led by Michael McKernon and Andrew Doyle. Click the links below for examples of their work.
Sample information sheet
Sample consent form
A brief overview of who would like to include in the research is shown below.
Participant briefing paper
Meet the research team
Meet the advisory team
Paula presented an overview of the study at a European conference (online). The presentation can be viewed here.