Andrew Doyle MBE
Andrew released this recording during learning disability awareness week to share his experience of being a co-researcher and adviser to two dementia research projects at the University of Stirling. Click the arrow to start the video.
Dr Paula Jacobs
One reason often cited for not including people with a learning disability and dementia in research is the anticipated difficulty with verbal communication. Additionally, sometimes people with a learning disability have not been told of their diagnosis of dementia. Thus, in most research studies that include people with a learning disability and dementia, researchers don’t actually mention the word dementia or ask people about it directly. For us, it was important to have more open and honest conversations using appropriate tools, and to be sure that couples knew about the diagnosis. We thought carefully about how to best facilitate those conversations to ensure they are accessible.
Exploring relationship journeys – what are we doing?
My name is Rachel. I am a student at the University of Stirling and I am working in the NHS in a psychiatric liaison team. My job involves assessing the mental health of people with a learning disability, and I have worked in dementia services in the past.
As part of my studies at the University of Stirling, I had the opportunity to undertake a virtual research placement with Stand by Me.
The team were all very friendly.
In my placement I learned about:
Andrew Doyle, Paula Jacobs, Jan Murdoch